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June 22 Preston is in all his glory with his grandfather, “Paw Paw” Don Raynor, for his last ride on the Grasshopper in North Carolina before the move to Colorado. Preston’s family wants to try CBD oil to control his seizures.
He leans in to give her a kiss on the cheek. A maroon line on the computer screen jumps to life.
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After Preston’s birth, the doctors told Ana that his strange leg twitches were common — the result of underdeveloped musles. It was three months later that she learned the doctors were wrong.
Preston loves country songs — the louder, the better.
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Expand this story
For Immediate Release:
It’s not just that parents are taking a gamble by moving to Colorado. It’s that they don’t even know the odds.
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The result of that one-sided conversation, though, is that parents who give CBD to their children must turn to one another and their medical marijuana providers for help. Facebook has become a crowd-sourced doctor’s office. Colorado’s sometimes ragtag community of medical marijuana growers acts as a de facto human services agency.
“Tried it,” Ana says.
June 18 A few days before moving to Colorado in search of new treatments for Preston, Ana takes the family to the shore in North Carolina for a short vacation.
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“Silly mommy,” he says to Ana, as she snuggles into a single hospital bed with him.
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“He needs to learn to take it!” Ana says.
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