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Ana Watson struggles for a good hold on Preston
Preston pulls back toward the lunchroom
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So Ana kept searching for a cure.
May 9 Preston’s at-home nurse Sheila Wall keeps watch after a sudden cloudburst while picking strawberries. Excitement and the quick drop in temperature brought on almost nonstop myoclonic seizures that Preston’s mother, Ana, fears may turn into a full grand mal seizure before they get home.
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Preston’s at-home nurse Sheila Wall
Horticulturist Penn Mattison
July 9 Ana Watson finally is able to get CBD oil for Preston. The journey hasn’t been without frustration. She has had to fill out many forms and file a change-of-patient record for the medical marijuana registry. She now is overwhelmed with worries: how much to buy and when; how strong it will be; how much to give Preston; whether to add THC.
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Expand this story
“You think you’d get used to seeing him like this,” she said. “But it scares me to death every time.”
While doctors at Children’s don’t exactly want their patients on CBD, they are eager to find out what it’s doing. Knupp told Ana that doctors at the hospital now recommend all patients have both an EEG and a bloodwork exam prior to starting CBD. They would like to run follow-up tests every three or four months.
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So, the entire day after that first dose, Ana watched Preston like a poker player looking for a tell.
Ana finally is able to get CBD oil
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Graphic: Mapping Preston’s seizures
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Is this finally it?
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