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“I can’t be the parent who didn’t try,” said Janea Cox, a mother from Georgia who brought her daughter to Colorado in March for treatment of seizures that left her unable to even breathe on her own. The move meant breaking up her family; her husband remained at home in Georgia.
But no doctor at Children’s recommends using cannabis or gives more than cautious advice about it.
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One of approximately 70 cannabinoids found in cannabis, CBD (or cannabidiol) is non-toxic and non-intoxicating. Also of great importance, CBD has been shown to be an anti-oxidant, an anxiolytic (to have anti-anxiety effects), an anti-carcinogen (to have anti-cancer effects), an anti-psychotic, an anti-convulsive, an anti-spasmodic, and is also able to reduce seizures and reduce the effects of spasticity.
A San Diego company is producing and selling what could be a legal alternative to medical marijuana.
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“Help,” Ana writes in a Facebook message to the community of parents who have tried the same treatment. “He is spitting it out and gagging. Can I mix it with food, give rectal? Any suggestions?????”
Preston watches as Ana and her mother argue
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“It’s OK,” Milly whispered into his ear, trying to talk him out of the seizure. “It’s OK.”
Preston plays carpenter in the dining room
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A spectrum of illnesses afflict the children coming to Colorado for medical marijuana: cancer, autism, Crohn’s disease. Most, though, are seeking help for incurable forms of childhood epilepsy — diseases with names taken from medical-journal bylines: Dravet syndrome, Lennox-Gastaut syndrome and Doose syndrome.
“Beautiful,” another wrote. “So beautiful.”
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The results swing wildly. The studies show anywhere from 30 to 80 percent of children seeing a significant seizure reduction while on CBD. And now even some doctors involved in the research question the findings.
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So, the entire day after that first dose, Ana watched Preston like a poker player looking for a tell.
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