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She promises him that his little sister, Sydney, will dance if he takes his medicine. “I’m not doing it,” Sydney says.
The neurologists were baffled and kept hunting for new medicines.
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September 17 Preston helps “Paw Paw” Don Raynor tighten gates on the stairs during his grandfather’s visit from North Carolina to bring wife Milly her car. Milly has moved into her own apartment to relieve some of the tension that can arise between her and Ana. She plans to live in Colorado as long as her daughter and the children are here.
July 24 Preston gently touches his friend Hailey McGuire as she rests at his home. Hailey, Tami King’s daughter, also has Dravet syndrome. King had stopped at Watson’s home for the comfort of a friend after a doctor’s visit at which Hailey had her seventh grand mal seizure since 2 a.m. and is “still in seizure mode” as Tami calls it. There is a connection between Dravet mothers, but there also seems to be a deep understanding between Dravet kids.
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October 8 Jared Stanley loads the drying poles onto the holding racks during the Realm of Caring harvest. The 17-acre plot will be hand harvested and dried by draping the plants over poles in a huge warehouse.
“It’s tested not only for the THC and CBD levels, it’s tested for pesticides, pathogens, anything that could be really harmful to the consumer,” Hartsel said. “We produce CBD on a large scale. Right now, no one is doing that."
October 8 Jonathan Berkbigler of Colorado Springs loads a horse trailer to transport cannabis plants to the drying warehouse during the Realm of Caring harvest in eastern Colorado.
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His muscles relaxed.
October 26 Preston has been eyeing his sister’s bike for a long time, taking every chance to sit on it when he could. On his 13th birthday, he finally has one of his own, with big training wheels.
It’s not just that parents are taking a gamble by moving to Colorado. It’s that they don’t even know the odds.
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In a lab in Seattle, black mice twitch uncontrollably as they work their way through an electrified cage, furry little avatars of kids with Dravet syndrome...
July 17 A nurse stops in for a quick check on Preston’s incisions and tube during his EEG while he is snuggling with his mother, Ana Watson, at Children’s Hospital in Aurora.
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Preston’s at-home nurse Sheila Wall
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It was subtle. But Ana swore there was a change in her son. He was more talkative, more stable on his feet.
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