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Over the fireplace hung a photo of Preston in a straw cowboy hat. He’s shirtless, leaning onto his left elbow. His mouth is closed and his eyes set in a stoic glare, and he appears startlingly mature — a boy trying to look like a man trying to look like a rock star.
The hospital didn’t see any improvement in the before-and-after EEGs of four kids whose seizures appeared to lessen significantly. That may have been due to something called “electroclinical dissociation,” where the seizure still occurs but its outward indicators disappear. It also might be that parents can pick up on smaller improvements than an EEG can, said Dr. Kevin Chapman, a pediatric neurologist at Children’s who was a co-author on the study.
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Her new friends in Colorado — parents who, like her, came to the state seeking hope through cannabis — cheered on her social media updates.
In the next week, blinky seizures will overwhelm Preston each afternoon. A week after that, Ana will write on Facebook, “Preston started a new ratio oil yesterday higher THC, today only being on it for the second day we saw 70-80 percent seizure reduction!!! BAM!!!! Bite that seizures!!!!” And then a week after that, Preston will have three grand mals in a day. A roller coaster, Ana will call it.
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ViPova, owned by Lexaria, has created a CBD oil tea product that ranges in price from $20-$107. ViPova is a US based company that is utilizing lipid technology to make CBD more bioavailable. This happens because the endocannabinoid system is lipid based which could mean that your dollar goes further because you need less CBD to have the same effects as an oil based CBD products.The Medics is a Colorado based CBD oil company that has created two types of tincture products that range in price from $40-$196. The first and less expensive line, called “High Grade”, is made from European hemp. The second line, known as “Premium”, is made from 100% USA Colorado grown hemp and cost a bit more. This difference in price is probably due to the sheer cost of growing their own hemp.
An absent seizure
May 8 Ana Watson has to keep a tight rein on her son, Preston, as they head off to school. “He is fearless,” she said. “He will walk straight off of the steps without looking down to see where he’s going.” Preston also acts totally on impulse “if he sees something he wants. Or if he gets a chance, he will run right after it — and he’s fast.”
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He had 200 seizures Monday through Thursday, so bad he lost his swallowing reflex,” Lynch said. “I have 25 known drugs that he had to be put in a medically induced coma and these are all FDA approved and the side effects are just horrible.
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Ana and Preston head off to school
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Some physicians are now stepping forward to work with providers on clinical trials for CBD, and doctors at Children’s have begun recording more specific details of the CBD products their patients are using — who is providing the medical marijuana and how much the child is taking, for instance. But the broader dynamic still hinders the study of CBD’s effectiveness. And that only increases the uncertainty that hangs over families such as Ana’s in their Colorado exile.
Preston’s grandmother supports his head
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Preston isn’t feeling well
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