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Ana eventually calls a friend, who suggests giving the medicine in emptied pill capsules delivered as a suppository. She grimaces. But she has already been at it for an hour. The odds that seizures will kill Preston increase every year; the damage in his brain may soon be permanent. She is compelled to try.
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Related: Every patient’s Dravet syndrome is a little different
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Preston starts singing.
“We don’t make recommendations about the marijuana therapy because we don’t have the information to do that,” said Dr. Amy Brooks-Kayal, the head of pediatric neurology at Children’s. “We feel very strongly that we need to act on good medical and scientific evidence, and that doesn’t exist.”
“But they don’t seem to me to be as long,” Ana said.
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“It’s been a constant struggle of trying to limit the number of seizures he has,” Greenwood said of Preston, who at age 1 started as a patient of Greenwood’s. “We have tried literally everything.”
“It’s OK,” Milly whispered again. “It’s OK.”
“I thought it went really well,” she says.
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On Apr. 1, 2014, Gov. Robert Bentley signed Carly's Law, named for three-year-old Carly Chandler, making Alabama the second state to legalize CBD oil. On Mar. 11, Alabama's Senate voted unanimously in favor of SB 174. The bill, sponsored by Republican Sen. Paul Sanford, calls for the University of Alabama to conduct research into cannibidiol's efficacy in treating neurological con***ions such as epilepsy. UAB would be able to prescribe the oil to approved patients. One million dollars has been allocated for the study.
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Ana grabs his arm, but he pushes her back. She tackles him and squirts the oil into his mouth, but he coughs it back up. She reaches for her cellphone.
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May 11 As the furniture slowly empties from the house, Preston, complete with safety goggles and boots, plays carpenter in the dining room while whirling dervish little sister Sydney practices handstands and walkovers in the new space.
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