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But now Maa wonders whether families who tried CBD with little success quit using the treatment before they could be included in the study. The Realm of Caring says only one patient had stopped using CBD at the time the survey was conducted. Maa is working on a genetic study trying to determine why some kids respond to CBD and some don’t.
Slowly working his way through the potatoes, Preston’s hands stopped and his eyelids flickered for a few seconds before popping back open. The first seizure of the day had come and gone.
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In a lab in Seattle, black mice twitch uncontrollably as they work their way through an electrified cage, furry little avatars of kids with Dravet syndrome...
Don Raynor holds Preston’s mouth closed and massages his throat
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October 16 Preston rides and controls a scooter for the first time by himself in the open space in front of his home.
This is marijuana that often comes in medicine bottles, an oil extract from cannabis plants that is frequently squirted under a patient’s tongue. It’s the opposite of most commercial cannabis. Rather than being high in THC — the plant’s psychoactive chemical — the marijuana is low in THC and rich in CBD, a compound that does not get users stoned but has shown medicinal potential.
September 3 Ana is trying a new way of giving Preston his oil. She is giving him straight THC by mouth separately from the CBD oil she gives him in his feeding tube. He hated it. She squirted it in and he started spitting and sputtering as soon as he tasted it. She ended up mixing it with formula and using his feeding tube. By using the oil separately she can figure his dosing ratios for tighter control.
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Ana Watson has decided to try adding THC
Yet these are gross simplifications and misrepresentations of the truth. The reality is much, much more layered than this caricature. It is not cannabis that can be dangerous to mental health and our brains, it is an excess of THC with insufficient CBD. Unfortunately, many modern day strains of cannabis contain vast quantities of THC and minimal quantities of CBD – and these strains are not medicinal. However they’re also not representative of the cannabis plant in its natural form. These strains are mutated cannabis plants bred to give the maximum intoxication, and with the health benefits bred out of the plant.
In advance of the move, Ana reduced the dose of one of the three main seizure medicines he takes — a drug called Onfi — because she had heard from other parents that CBD amplifies it. He was now taking about a third less than what Greenwood had prescribed, although she didn’t tell the doctor her plan.
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“Yes, that’s what we got with that,” Ana says.
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There are times, Ana said, when she can almost see what Preston could become if the seizures would just let him.
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Our mission is to provide a legal and safe alternative for those in need of phyto-cannabinoids. Our products made from our phyto-cannabinoid rich (PCR) hemp extract are identical to products available to patients in medical cannabis states (with the exclusion of being from industrial hemp and being non-psychoactive). Products made from our PCR hemp extracts are 100% THC free and legal in 49 states.
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