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“It was fun, though, wasn’t it, Preston?”
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While Preston played later in the backyard August sunshine, his eyes seemed to roar.
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Related: Every patient’s Dravet syndrome is a little different
On Apr. 7, 2015, the Idaho House approved a CBD oil bill by a close 39-30 vote. Named for 11-year-old epilepsy patient Alexis Carey, the legislation would allow parents to possess up to 32 fluid ounces of liquid cannabidiol (max 15% CBD and .03% THC) to administer to chilldren who suffer from seizure disorders. On Apr. 16, Gov. Butch Otter vetoed the bill. However, he says he'll issue an executive order requiring the state's Department of Health and Welfare to study the effects of CBD oil pn epilepsy; this may lead to accees to the oil for children. But Idaho at this point sode not qualify as a CBD-legal state.
Charlotte Dravet’s message to parents is simple: Don’t move.
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“But you have to be careful that you’re not making things in your brain,” she said. “We’re all watching him and his behavior.”
Colorado has a special process for kids to be registered as medical marijuana patients under state law. These are the steps:
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Preston meets Dr. Alan Shackelford
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It wasn’t until Preston was 6 years old that doctors finally put a name to his con***ion: Dravet syndrome. And in some ways, that was worse than not knowing at all because it meant there was no cure to find.
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