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Myoclonic seizures Brief seizures characterized by little muscle jerks. Preston’s eyelid flutters are a myoclonic seizure.
“Seizures all of the time”
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And so this was the logical next step. A leap into the unknown.
“No. Not yet.”
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July 11 Sydney Watson, 8, tries to get older brother, Preston, to drink some sweet tea. Sydney was Preston’s little nurse when they were younger, helping her mother care for him. Preston hasn’t been eating very well or taking medications without a fight lately, and Ana asked Sydney to help.
She asks about the amount she’s giving. “Should I up it?”
The Critical Need for more research and Cannabis Rescheduling
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A bundle of 21 multicolored electrical wires poke from the top of a wrapping on Preston’s head, running off the bed and to the computer. Every gesture, every word, every eye blink shows up as activity on the screen, where blue, maroon and green lines measure Preston’s brain activity. It is one answer to the question that has vexed Ana for the past 12 years: What is happening inside her son’s head?
July 12 Ana watches Preston fight off his first dose of CBD oil, being administered by a family friend who was visiting from North Carolina. The dose went into Preston'’s mouth, but he immediately spit it out.
Since then, she says he has had far fewer seizures and is able to sleep through the night.
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“For the doctor to know what they need to know about an illegal drug is a very high expectation,” said Dr. Jacqueline French, an epilepsy specialist at New York University’s Langone Medical Center. She said CBD is “driving the conversation” many doctors now have with their patients.
What is clear is that this system of receptors is critical to human health. We need cannabinoids in the same way that we need vitamins. They are part of a healthy lifestyle.
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Expand this story
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“Colorado represents hope at this point,” she said. “This is the state of hope.”
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