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October 7 Preston and Haleigh dance while Tami watches in the background. The families met at Milly’s house for dinner in order to save money on food and to get together for something other than emergencies.
A handful of organizations have sprouted in the past couple of years to offer support to parents moving to Colorado and those already here. Communities of families have grown up to provide advice and encouragement and a happy source of friendship.
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Preston’s breaths grew quieter.
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October 26 Preston has been eyeing his sister’s bike for a long time, taking every chance to sit on it when he could. On his 13th birthday, he finally has one of his own, with big training wheels.
But, even now, the seizures remain a mystery. Some little eye-flutter seizures cause leaping spikes on the screen. Some seem to skip by without a change in the pattern. So chaotic is Preston’s brain that, looking later at the electroencephalogram, or EEG, doctors will have a hard time telling from the readings when he was awake and when he was asleep, when he was seizing and when he was still.
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Although Hemp Meds does not grow the hemp or produce the oil used in its products, it’s parent company however, does. Through selective breeding they developed unique hemp cultivars that naturally produce elevated levels of CBD (cannabidiol). These special high-CBD hemp cultivars are sustainably grown and harvested in select microclimates on generational farms in hemp-friendly countries. Once harvested, this hemp is carefully processed and undergoes high-tech quality testing. The resulting standardized, premium quality CBD hemp oil is then imported and put into oil concentrations, tinctures, and topical products to be sold around the world.
Many companies mislead clients when it comes to phyto-cannabinoid dosing on their bottles. Our phyto-cannabinoid MG strength is reflective of the actual active phyto-cannabinoids in that particular product. If our bottle says 100MG of phyto-cannabinoids that products contains 100MG of actual active phyto-cannabinoids.
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Milly gathered Preston up and sat him on her lap in a chair. He breathed heavily, wheezing in and huffing out. His eyes were shut.
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July 5 Preston wakes up for a moment during a series of myoclonic cluster seizures caused by Dravet syndrome. Preston can have hundreds of “blinky” or “butterfly” seizures per session. If the cycle is not broken, it can lead to grand mal seizures.
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Some physicians are now stepping forward to work with providers on clinical trials for CBD, and doctors at Children’s have begun recording more specific details of the CBD products their patients are using — who is providing the medical marijuana and how much the child is taking, for instance. But the broader dynamic still hinders the study of CBD’s effectiveness. And that only increases the uncertainty that hangs over families such as Ana’s in their Colorado exile.
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