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“It’s OK,” Milly whispered into his ear, trying to talk him out of the seizure. “It’s OK.”
Was it working?
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“I thought it went really well,” she says.
Ana takes the family to the shore
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July 4 “We’ll try something different,” Don Raynor says as he holds Preston’s mouth closed and massages his throat while Ana holds her son’s head to get Preston to swallow his medication. Preston has refused to take his meds without a fight for a solid week, and everyone is worried and exhausted by the efforts to get him to take them. This didn’t work either: He spit them all out.
July 16 Recovery room nurse Breanne Hagihara explains to Ana Watson that she will have to use extra care for the next six weeks as Preston’s incision for his gastrostomy tube heals and the permanent button can be put in at Children’s Hospital in Aurora.
Charlotte Dravet’s message to parents is simple: Don’t move.
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Exodus
But Preston watched rapturously, planting his elbows onto his knees and his head into his hands. His eyes are a deep walnut color and are framed by long eyelashes. Brown hair swirls atop his head in casual rebellion. His smile is all in the top lip, pulling up past his gum line to reveal a row of glimmering teeth.
Graphic: Inside look at Preston’s fight
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So optimistic is Ana that, as Preston’s 13th birthday approaches, she makes a bold decision: It’s time for her son to get his first real bicycle.
Medical marijuana has made Colorado a promised land for desperate parents trying to save their children.
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A carefully designed watering schedule
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“Time to get up, Boo-Boo,” Ana said to him. “Come on.”
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