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“Seizures all of the time”
Mapping Preston’s seizures
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She checked her phone for online answers. Finally, eager to move on, she set the phone down.
Today, there are 427 children under 18 on the state’s medical marijuana registry, including 13 under 2 years old. That total number is up from just 60 in August 2013, when the documentary aired. More arrive every month.
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“It was fun, though, wasn’t it, Preston?”
“AWESOME!!” one wrote beneath the video of Preston singing.
October 16 Preston rides and controls a scooter for the first time by himself in the open space in front of his home.
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“Yes,” Ana sighs, “we’ve tried everything.”
Related: Every patient’s Dravet syndrome is a little different
May 8 The dregs of his afternoon seizure medications are still on his lips as Preston rests on his porch after a long day of school interrupted by numerous myoclonic seizures.
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The seizure — the second grand mal in a week — flustered Ana. And that’s why she finds herself back at the house in eastern Boulder County. Jason Cranford meets her on the porch.
“Yes, that’s what we got with that,” Ana says.
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“You think you’d get used to seeing him like this,” she said. “But it scares me to death every time.”
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