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He grew reluctant to eat or drink, which left him not only weak but also not getting the right dose of conventional medicine hidden in his food. The day the movers arrived, Preston sat on the grass holding his grandmother’s hand while the blinkies attacked.
“An uncontrolled experiment”
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Ketogenic diet, the doctor asks?
“Silly mommy,” he says to Ana, as she snuggles into a single hospital bed with him.
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“Is that the one that causes the rash?” Ana asks.
It took 12 days after arriving in Colorado for Ana to get the marijuana oil for Preston’s first dose. Twelve days of waiting. Twelve days of seizing. Twelve days of wondering what would happen.
By many people – I would think significantly more than 50% of people in this country – cannabis is still thought of this way: it is called a dangerous “narcotic”. It is thought to lower IQ and make people lazy. It is thought to induce psychosis.
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The doctors relied on parents to report how much CBD reduced seizures. And that opened the door for the study’s two most intriguing findings.
Asked whether Preston would ever be able to speak a complete sentence, Greenwood’s eyes lit up with the idea, then quickly dimmed.
Parents hope to see progress
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Ana gives Preston his CBD oil
Finally dragging Preston from bed, Ana sat him in his skull-and-crossbones pajamas in front of the television and turned on a video of Barney the dinosaur. Sydney walked by and scrunched up her face. She had already outgrown Barney.
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May 8 The dregs of his afternoon seizure medications are still on his lips as Preston rests on his porch after a long day of school interrupted by numerous myoclonic seizures.
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May 29 Clones of high-CBD strains of cannabis, including plants intended for use in making Charlotte’s Web, sit under lights at a growing facility in eastern Colorado.
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