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It’s not just that parents are taking a gamble by moving to Colorado. It’s that they don’t even know the odds.
After sailing through Virginia's Senate, the House version of SB 1235 received a unanimous 98-0 vote in favor on Feb. 10. The bill prevents patients from being prosecuted for using cannabis oil for seizure-related con***ions. On Feb. 26, 2015, Democrartic Gov. Terry McAuliffe signed the bill into law, making Virginia the 12th state to legalize CBD oil.
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July 23 An absent seizure looks and feels just like it sounds: Preston stopped interacting, staring into nothing, drool leaking from his mouth, his hands unmoving. It was a startling change from the blinking and jaw-working during his “normal” myoclonic clusters. Dravet syndrome children experience many types of seizures. The seizures can change, and some children will have a combination of seizure types, all during one episode.
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A family photograph of Preston as a baby.
July 3 Preston tries his hardest to get this box into the family’s new home. Finally, he is able to help unload the trailer, which has held his complete attention as it followed his family across the country on the trip to Colorado.
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“We pushed that too far, didn’t we?”
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An early and oft-reported survey of children on Charlotte’s Web found that 80 percent who tried it eliminated at least three of every four of their seizures. Now, even one of the specialists involved in that study questions whether it was overly optimistic. Subsequent studies have suggested the response rate might be closer to 30 percent or, perhaps, even lower.
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