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Don Raynor holds Preston’s mouth closed and massages his throat
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We use medicinal hemp genetics rather than feral hemp genetics for our oils. This allows for a oil with a far richer cannabinoid profile
Related: Every patient’s Dravet syndrome is a little different
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“The big thing that parents are always saying,” Ana said, “is they want their child to say, ‘I love you.’?”
In the next week, blinky seizures will overwhelm Preston each afternoon. A week after that, Ana will write on Facebook, “Preston started a new ratio oil yesterday higher THC, today only being on it for the second day we saw 70-80 percent seizure reduction!!! BAM!!!! Bite that seizures!!!!” And then a week after that, Preston will have three grand mals in a day. A roller coaster, Ana will call it.
Two days later, they’re back again. A blue line squiggles furiously up and down on a computer screen.
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July 29 Preston meets Dr. Alan Shackelford at his office in Denver. He and his mother, Ana, are visiting the doctor for help with Preston’s dosing. Shackelford evaluated Preston’s physical con***ion, then went over his medical history with Ana and her mother to figure out a starting point to use the CBD oil.
She asks about the amount she’s giving. “Should I up it?”
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“Tried it,” Ana says.
Keeping daydreams in check
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Preston’s at-home nurse Sheila Wall
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A desperate hope and well-publicized stories about kids who have responded to the drug drive the families here, despite scant research on CBD’s overall efficacy. Scientists know so little about the treatment that it’s not even clear what CBD might do in the brain to impact seizures.
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