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September 17 Preston helps “Paw Paw” Don Raynor tighten gates on the stairs during his grandfather’s visit from North Carolina to bring wife Milly her car. Milly has moved into her own apartment to relieve some of the tension that can arise between her and Ana. She plans to live in Colorado as long as her daughter and the children are here.
Colorado has a special process for kids to be registered as medical marijuana patients under state law. These are the steps:
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Seven months and 1,600 miles after their journey began, Ana has finally given Preston his first dose of marijuana.
Seven months and 1,600 miles after their journey began, Ana has finally given Preston his first dose of marijuana.
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Step 2: Two separate doctors must recommend that the child use marijuana. Doctors can make the recommendation only if they diagnose the child with one of eight con***ions: cancer, HIV, glaucoma, cachexia, persistent muscle spasms, seizures, severe nausea or severe pain.
“It smells like marijuana,” she laughed. “I didn’t think it would.”
Kids using CBD don’t smoke it. Instead, it comes infused into a cooking oil, like olive or safflower oil. Typically, parents are told to squirt the oil under their children’s tongues. But some families mix it in food or give it through a feeding tube.
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While some can be treated by targeting the specific areas of the brain where the seizures’ electrical overloads originate, Dravet’s seizures come from everywhere, the result of a genetic mutation that occurs in every nerve cell in the brain.
Preston helps “Paw Paw” Don Raynor
But no one knows more than anecdotes because Colorado does not track how many families come to treat their children with medical marijuana — although it’s in the low hundreds — or where they go.
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Graphic: Inside look at Preston’s fight
And so this was the logical next step. A leap into the unknown.
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Preston helps unload the trailer
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