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A handful of organizations have sprouted in the past couple of years to offer support to parents moving to Colorado and those already here. Communities of families have grown up to provide advice and encouragement and a happy source of friendship.
Related: French scientist cautions parents: Too little known about CBD treatment
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But for now, she walks back to her minivan and returns home to try again.
Watch Dr. Kelly Knupp explains what doctors discover by examining Preston’s electroencephalogram.
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Her bookshelf at home charted the journey and spoke to her struggle. First came “What to Expect in the First Year.” Then “Keeping Faith.” Then “Delmar’s Drug Reference for Health Care Professionals.” Then “Three Weeks to Say Goodbye.”
Being Preston’s mother taught her not to cry because tears won’t make her son better. For her, there is a process: Try one thing, then move on to the next. Lessons can be learned and applied.
But, when parents such as Ana Watson arrive with little more than a desperately sick child and a hope to make it better, they walk into uncharted territory. They become part of a medical experiment that plays out in living rooms, not doctors’ offices.
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Two days later, they’re back again. A blue line squiggles furiously up and down on a computer screen.
Ana finally is able to get CBD oil
July 17 A nurse stops in for a quick check on Preston’s incisions and tube during his EEG while he is snuggling with his mother, Ana Watson, at Children’s Hospital in Aurora.
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Ana Watson blocks the door to keep Preston inside
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