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Poceta remains cautiously optimistic about the benefits of CBD. He says the California Medical Association has called for increased evaluation of the medical marijuana industry to allow for more research and more information.
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Some epilepsies respond well to generalized anti-seizure drugs. But the specific genetic mutation of each Dravet patient is different, meaning what works for some won’t work for others. Preston has at least four different kinds of seizure types, and they varied in severity and frequency as he grew older.
Much science has been done regarding the medical uses of CBD. In fact, much more science than many in the media and medical professions usually acknowledge.
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Expand this story
A leap into the unknown
“The big thing that parents are always saying,” Ana said, “is they want their child to say, ‘I love you.’?”
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“Seizures all of the time”
May 12 Preston pulls back toward the lunchroom with Regina Lane, his in-school nurse, as he hears a friend in the hallway. Regina has been with Preston for five years. She knows that if something catches his attention, he will head in that direction. She also knows how to persuade him to focus on what he might be doing.
“Yes, that’s what we got with that,” Ana says.
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August 6 Preston’s grandmother, Milly Raynor, supports his head as she tries to untangle him from a hose he tripped over, and a seizure kicks in. The pain from the fall while playing with a water slide appears to have caused the grand mal seizure. A doctor’s appointment the next day reveals a broken bone in his foot.
She checked her phone for online answers. Finally, eager to move on, she set the phone down.
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The journey would be harder and more complicated than she ever imagined.
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