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Related: Epilepsy drug development is a sparse field
July 29 Preston meets Dr. Alan Shackelford at his office in Denver. He and his mother, Ana, are visiting the doctor for help with Preston’s dosing. Shackelford evaluated Preston’s physical con***ion, then went over his medical history with Ana and her mother to figure out a starting point to use the CBD oil.
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A desperate hope and well-publicized stories about kids who have responded to the drug drive the families here, despite scant research on CBD’s overall efficacy. Scientists know so little about the treatment that it’s not even clear what CBD might do in the brain to impact seizures.
Turn the page, and there’s a picture of Preston in a white onesie. Then a picture of Preston sitting in a kid-sized Jeep.
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The CBD rush to Colorado is a movement that divides patients from doctors.
May 11 As the furniture slowly empties from the house, Preston, complete with safety goggles and boots, plays carpenter in the dining room while whirling dervish little sister Sydney practices handstands and walkovers in the new space.
In her hand, Ana holds the first dose of what she hopes will finally stop the seizures. More than a dozen medicines have already failed, and continuing down the certain path of conventional treatments promises only more misery and maybe even death for Preston. So Ana has chosen uncertainty in the form of this amber oil created in a Boulder County garage.
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“It’s a boy!” the sticker on the page proclaims.
“Beautiful,” another wrote. “So beautiful.”
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Ana’s mom, Milly, stirs more medicine into ice cream and brings it over. But Preston won’t eat.
On June 30, 2015, House bill 32 went into effect, making Wyoming the 16th state to legalize CBD oil. The state Department of Health is required to create hemp extract registration cards and a confidential data base. A neurologist must first determine whether the patient is qualified to use cannabidiol.
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“No. Not yet.”
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“Yes,” Ana sighs, “we’ve tried everything.”
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