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But now Maa wonders whether families who tried CBD with little success quit using the treatment before they could be included in the study. The Realm of Caring says only one patient had stopped using CBD at the time the survey was conducted. Maa is working on a genetic study trying to determine why some kids respond to CBD and some don’t.
Much science has been done regarding the medical uses of CBD. In fact, much more science than many in the media and medical professions usually acknowledge.
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“Stop arguing with me!” Ana finally says. “Damn.”
Preson’s eyes slowly opened somewhere under the fluff of his mother’s comforter.
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Let’s say this company’s extract is only 30% phyto-cannabinoids by weight, then that product that has a label indicating it has 100MG of hemp extract only has 30MG of active phyto-cannabinoids in it. This happens a lot in this industry and buyers need to beware. Do your research. Ask for transparency.
“In a way,” he told Ana, “it’s an uncontrolled experiment. Which I don’t necessarily like. But we are pressed into this circumstance.”
As a pediatric neurologist, Greenwood had treated hundreds of kids with epilepsy in his 37-year career. But Preston’s case was a unique challenge.
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Dr. Joshua Hartsel tests the products of HempMedPX and says they contain less than 1 percent THC and up to 90 percent CBD. He says the products are tested three to five times and at least once at a third-party lab.
“The vast majority of people, if they were going to respond, had a dramatic reduction of seizures,” Maa said. “That doesn’t represent the larger, global number of people who had exposure to it. We don’t know those true numbers yet.”
June 22 Preston is in all his glory with his grandfather, “Paw Paw” Don Raynor, for his last ride on the Grasshopper in North Carolina before the move to Colorado. Preston’s family wants to try CBD oil to control his seizures.
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In her hand, Ana holds the first dose of what she hopes will finally stop the seizures. More than a dozen medicines have already failed, and continuing down the certain path of conventional treatments promises only more misery and maybe even death for Preston. So Ana has chosen uncertainty in the form of this amber oil created in a Boulder County garage.
On the next page is a picture of Preston with his head swaddled in gauze, a thick bundle of electrical wires poking out of the top of the wrapping like a bizarre ponytail.
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Charlotte Dravet’s message to parents is simple: Don’t move.
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Ana takes the family to the shore
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