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A bundle of 21 multicolored electrical wires poke from the top of a wrapping on Preston’s head, running off the bed and to the computer. Every gesture, every word, every eye blink shows up as activity on the screen, where blue, maroon and green lines measure Preston’s brain activity. It is one answer to the question that has vexed Ana for the past 12 years: What is happening inside her son’s head?
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The doctor continues down the list of anti-epilepsy medications, collecting the medical history of Ana’s 12-year-old son, Preston, whose seizures cause such unrelenting brain damage that he functions at the level of a 2-year-old. The doctor ticks through 13 different medicines, but Preston has already tried each one, to little effect.
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Watch Haleigh Cox was diagnosed with Lennox-Gastaut Syndrome as a baby. She is the namesake of “The Haleigh’s Hope Act,” a bill filed in Georgia to legalize cannabis oil high in CBD. The oil is used to control her seizures.
On Apr. 30, 2015, Gov. Mary Fallon signed legislation making Oklahoma the 14th state to legalize CBD oil. “This bill will help get sick children potentially life-changing medicine,” Fallin started. “By crafting the legislation in a way that allows for tightly controlled medical studies, we can ensure we are researching possible treatments in a responsible and scientific way. It is not marijuana, and it is not anything that can make you high. This law has been narrowly crafted *****pport highly supervised medical trials for children with debilitating seizures."
Preston meets Dr. Alan Shackelford
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HB 885, CBD oil legislation known as Haleigh's Hope Act (named for four-year-old Haleigh Cox), failed to receive a Senate vote after sailing through Georgia's House on Mar. 4, 2014. However, in May, Gov. Nathan Deal signed an executiuve order calling for a study. The British firm GW Pharmaceuticals and Georgia Regents University are collaborating on the research. The legislation was reintroduced for the 2015 session. The House passed it on Mar, 25, 2015. The bill covers eightt con***ions, including seizures, cancer, MS, ALS, sickle cell and mitchondria. Gov. Deal signed the bill into law on Apr. 16, making Georgia the 13th state to legalize CBD oil.
“He needs to learn to take it!” Ana says.
Ana Watson holds her son, Preston
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He leans in to give her a kiss on the cheek. A maroon line on the computer screen jumps to life.
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However, CBD is considered more effective when it is processed from high CBD cannabis plants. The most famous strain at the moment is Charlotte’s Web, but ACDC, Harlequin and Cannatonic are also quickly growing in reputation.
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Asked whether Preston would ever be able to speak a complete sentence, Greenwood’s eyes lit up with the idea, then quickly dimmed.
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