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She had to wait another three days after picking up the oil for a lab report to come back to confirm its potency. When the day of the first dose finally arrived, in mid-July, Ana bounded into the kitchen of her new home to pull a bottle of the oil from the fridge.
July 25 Preston isn’t feeling well and took to the couch, but sister Sydney decided he needed a little cheering up by playing swoosh with his blanket.
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An absent seizure
Preston loves country songs — the louder, the better.
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Two days later, they’re back again. A blue line squiggles furiously up and down on a computer screen.
Preston pulls back toward the lunchroom
Ana takes the family to the shore
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Related: Every patient’s Dravet syndrome is a little different
A voice tiptoed back to her with the peanut-butter-mouth slur of a child’s early words: “Wuh moh minuh.”
Ana was only 19 when she learned she was pregnant with Preston. She was a college freshman who had to take a break from school and live with her parents for a few months in rural Whitsett, N.C., while she prepared for motherhood. Her pregnancy was normal, aside from the delicate tremors she sometimes thought she felt in her womb. Her high school sweetheart, Preston’s father, drifted out of her life. He has never seen Preston in person.
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A row of cannabis medicine bottles. Cannabis had been a popular medication, and was prescribed for many ailments before the 1937 “Marihuana Tax Act” effectively outlawed it.
“AWESOME!!” one wrote beneath the video of Preston singing.
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Physicians assistant Tom Dishion talks to Ana
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Everyone in her family has their own vision of what Preston might be. Ana’s mom sees Preston getting a job at a park running a lawn mower. Ana’s dad — the man who taught Preston how to be a boy, to love mowers and tractors, and to shout, “Crank it!” — imagines playing catch with his grandson.
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