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July 5 Preston wakes up for a moment during a series of myoclonic cluster seizures caused by Dravet syndrome. Preston can have hundreds of “blinky” or “butterfly” seizures per session. If the cycle is not broken, it can lead to grand mal seizures.
“You think you’d get used to seeing him like this,” she said. “But it scares me to death every time.”
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May 29 Jake Beckman concentrates on splitting a plant stem for cloning. The Stanley brothers have specialized in breeding high-CBD strains of cannabis, including Charlotte’s Web.
Ana and Preston head off to school
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July 3 Preston gives his mother a suspicious look as she tries to offer him ice cream with an M&M on top. He knows she is trying to give him his afternoon medications; after years of this working for their family, Preston has stopped falling for the ruse and fights it every time.
Preston gives his mother a suspicious look
Preston’s baby book begins with pictures from a sonogram.
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On Apr. 1, 2014, Gov. Robert Bentley signed Carly's Law, named for three-year-old Carly Chandler, making Alabama the second state to legalize CBD oil. On Mar. 11, Alabama's Senate voted unanimously in favor of SB 174. The bill, sponsored by Republican Sen. Paul Sanford, calls for the University of Alabama to conduct research into cannibidiol's efficacy in treating neurological con***ions such as epilepsy. UAB would be able to prescribe the oil to approved patients. One million dollars has been allocated for the study.
“I know!” Ana pleads. “I’m sorry!”
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An absent seizure
“You’re overdoing it,” Milly admonishes. “Skipping it is not going to hurt him.”
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He can have hundreds of blinkies a day. And, though they usually pass gently, each one is like an eraser across his brain’s chalkboard. Over and over, new development is wiped clean by the seizures. So, over and over, he learns the same things.
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“Silly Preston,” she says back.
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