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    The results swing wildly. The studies show anywhere from 30 to 80 percent of children seeing a significant seizure reduction while on CBD. And now even some doctors involved in the research question the findings.
    Most people’s opinion regarding cannabis is still affected by the decades of bad press given to “marijuana”. This negative perception has not only been a gross misrepresentation of a remarkably medicinal plant, but has cost millions of lives in the process.
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    So Ana visited her CBD provider, who gave her oil at a 10:1 ratio of CBD to THC, and the next day she watched as her son ate better than he had in months: a plate of fried okra, a plate of potato chips smothered in barbecue sauce, a stick of string cheese, a Frosty and, most surprising of all, tuna salad with crackers.
    “Keppra often causes behavioral issues,” the doctor responds.
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    Cannabidiol (CBD) is one of the many chemicals in marijuana. Recent publicity about children who suffer from seizures benefitting from oil extracted from marijuana that has almost no THC has set off a wave of legislation like never seen before. Now state reps can favor marijuana without the fear of people getting high from it. This explains why so many Republicans are sponsoring these bills.
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    There are times, Ana said, when she can almost see what Preston could become if the seizures would just let him.
    She was giving Preston a bath — not his first, not unusual. But then his eyes rolled back in his head and his face went white and his little body began to shake and Ana was certain he was dying. At the hospital, doctors quickly sent her home. Lots of kids have random seizures that never recur, they said. But Preston’s did.
    July 24 Preston gently touches his friend Hailey McGuire as she rests at his home. Hailey, Tami King’s daughter, also has Dravet syndrome. King had stopped at Watson’s home for the comfort of a friend after a doctor’s visit at which Hailey had her seventh grand mal seizure since 2 a.m. and is “still in seizure mode” as Tami calls it. There is a connection between Dravet mothers, but there also seems to be a deep understanding between Dravet kids.
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    With CBD tinctures, capsules, creams and teas being sold on Amazon and eBay the legal status of CBD might feel straight-forward and secure, but these are CBD products made from hemp plants. When CBD is made from cannabis plants the law get a lot murkier.
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    In August, she learned online about CBD and obtained hemp oil from a friend of a friend. That oil happened to be high in THC and made Blake have more seizures. In search of a safe, consistent product, Lynch found HempMedPX. She put the CBD-rich hemp oil into a pill for Blake to ingest.
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    “We don’t make recommendations about the marijuana therapy because we don’t have the information to do that,” said Dr. Amy Brooks-Kayal, the head of pediatric neurology at Children’s. “We feel very strongly that we need to act on good medical and scientific evidence, and that doesn’t exist.”
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