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Dravet isn’t like other epilepsies.
Related: Every patient’s Dravet syndrome is a little different
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October 16 Preston rides and controls a scooter for the first time by himself in the open space in front of his home.
But, to get a true starting level, the EEG meant Ana would need to take Preston off CBD temporarily. She had spent seven months planning how to get to Colorado for the treatment. She was pausing it after five days.
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July 17 A nurse stops in for a quick check on Preston’s incisions and tube during his EEG while he is snuggling with his mother, Ana Watson, at Children’s Hospital in Aurora.
Multiple Sclerosis
“In his case, the biggest problem is he has seizures every day,” Greenwood said. “Multiple seizures. At times, he could walk down the hall and you could see 10 to 20 seizures happening, little jerks. So he was literally having seizures all of the time.”
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Jonathan Berkbigler of Colorado Springs
Ana Watson holds her son, Preston
Smaller numbers of children in California and other states have also begun to use marijuana to treat seizures. But what makes Colorado the epicenter is the state’s large medical marijuana system, which allows for kids to be registered patients; the growing community of families with sick children; and the feedback loop of publicity that surrounds the treatment. Every happy story about a family seeing success with cannabis in Colorado pushes another family to move here.
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The state health department, which manages the patient registry that all children using medical marijuana must join, offers almost no guidance.
A faint smell of cow manure wafts in the breeze as Ana pulls her minivan up to a house in eastern Boulder County.
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Preston watches as Ana and her mother argue
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“We don’t make recommendations”
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