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So now Ana is sitting in the hospital whose doctors have been the most outspoken in Colorado in urging parents not to use marijuana to control seizures — it’s too risky, they say; there are too many unknowns — and she is hoping for advice on what to do.
“You think you’d get used to seeing him like this,” she said. “But it scares me to death every time.”
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Physicians assistant Tom Dishion talks to Ana
Ana Watson has decided to try adding THC
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July 24 Preston gently touches his friend Hailey McGuire as she rests at his home. Hailey, Tami King’s daughter, also has Dravet syndrome. King had stopped at Watson’s home for the comfort of a friend after a doctor’s visit at which Hailey had her seventh grand mal seizure since 2 a.m. and is “still in seizure mode” as Tami calls it. There is a connection between Dravet mothers, but there also seems to be a deep understanding between Dravet kids.
“Silly mommy,” he says quietly.
Colorado has a special process for kids to be registered as medical marijuana patients under state law. These are the steps:
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At least two children and one woman across the country have died while their families prepared to move to Colorado for medical marijuana. One child who made it here died when the treatment didn’t help her con***ion enough. Her mother moved back home alone.
Related: Every patient’s Dravet syndrome is a little different
“You’re overdoing it,” Milly admonishes. “Skipping it is not going to hurt him.”
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Related: Epilepsy drug development is a sparse field
July 7 Preston, curious about everything, watches his new pediatrician, Dr. Edward Maynard, adding notes from the 12-year-old’s first visit and examination at Iron Horse Pediatrics in Colorado Springs. Doctors, hospitals, nurses and tests have been a part of Preston’s life since he was diagnosed with Dravet syndrome as a baby.
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Inside Children’s Hospital Colorado, Ana Watson stares across the small exam room at the woman in a white lab coat
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At 12 years old, Preston cannot spell his name. He cannot reliably count to 10. He is still learning his colors. He doesn’t know his mom’s name or where he lives or how to call home if he gets lost. He wobbles when he walks and falls over easily.
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