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A desperate hope and well-publicized stories about kids who have responded to the drug drive the families here, despite scant research on CBD’s overall efficacy. Scientists know so little about the treatment that it’s not even clear what CBD might do in the brain to impact seizures.
Preston has been eyeing his sister’s bike
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“You think you’d get used to seeing him like this,” she said. “But it scares me to death every time.”
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To Ana, it sometimes seemed as if what epilepsy didn’t take from her son, the drugs would. But she also knew that just one year of uncontrolled seizures meant a 1 percent chance of dying. The longer Preston’s seizures ran riot, the likelier epilepsy would kill him.
“Why did we even come down here if he’s not going to take it!?” she snaps.
November 5 Ana Watson and MGA Home Healthcare nurse Chelle carry Preston to a bean-bag chair. Preston has suffered continuous myoclonic clusters most of the day. He had a 30-second grand mal seizure early in the afternoon. Preston’s new normal is to go straight back into myoclonic clusters after a seizure. Dravet syndrome children usually have a variety of seizure types, which can change for a number of reasons.
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Nowhere on the website does ViPova say how many milligrams of CBD you’ll be getting for your money. On top this, for some reason, ViPova decided to add dry milk to this product making it a non-vegan product. This is strange because if users want milk in their tea, they can add it themselves.
“Open up,” Ana coos.
So, the entire day after that first dose, Ana watched Preston like a poker player looking for a tell.
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Part 3
September 15 Ana Watson gives Preston his CBD oil in the recovery room after getting his permanent feeding button in place at Children’s Hospital in Aurora.
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He can have hundreds of blinkies a day. And, though they usually pass gently, each one is like an eraser across his brain’s chalkboard. Over and over, new development is wiped clean by the seizures. So, over and over, he learns the same things.
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Colorado has a special process for kids to be registered as medical marijuana patients under state law. These are the steps:
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