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Preston is in all his glory
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Inside Children’s Hospital Colorado, Ana Watson stares across the small exam room at the woman in a white lab coat
On Mar. 25, 2014, Utah Gov. Gary Herbert signed HB 105 into law, making Utah the first state to legalize CBD oil. On Mar. 11, Utah's Senate unanimously passed the bill, sponsored by Republican Rep. Gage Froerer, which instructs the state's Department to Agriculture to grow low-THC industrial hemp for the purpose of producing cannabis oil. Known as the "Plants Extracts Amendment," the bill allows Utah resdients to acquire the medicine in Colorado and bring it back to Utah.
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A desperate hope and well-publicized stories about kids who have responded to the drug drive the families here, despite scant research on CBD’s overall efficacy. Scientists know so little about the treatment that it’s not even clear what CBD might do in the brain to impact seizures.
“Open up,” Ana coos.
Also known as cannabis oil or cannabidiol, industrial hemp oil has been growing in popularity as a self-treatment option for many people suffering from emotional or physical discomfort. While sometimes compared to medical marijuana, industrial hemp oil is not illegal, nor is it a psychotropic drug. Although cannabidiol is an ingredient in both regular and medical marijuana, the main component, THC, is only present in very small traces in cannabidiol cannabis oil. While some people may come across industrial hemp oil by looking for marijuana oil for sale, marijuana CBD is not the same. As mentioned, industrial hemp oil is not a drug, nor does it contain enough THC to produce a psychotropic effect.
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May 8 The dregs of his afternoon seizure medications are still on his lips as Preston rests on his porch after a long day of school interrupted by numerous myoclonic seizures.
A voice tiptoed back to her with the peanut-butter-mouth slur of a child’s early words: “Wuh moh minuh.”
Expand this story
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September 3 Ana is trying a new way of giving Preston his oil. She is giving him straight THC by mouth separately from the CBD oil she gives him in his feeding tube. He hated it. She squirted it in and he started spitting and sputtering as soon as he tasted it. She ended up mixing it with formula and using his feeding tube. By using the oil separately she can figure his dosing ratios for tighter control.
Sitting in the hospital meeting room, Greenwood said there was little more he could do for Preston with the medicines available. Without something new, Preston’s seizures would continue into adulthood — assuming he didn’t die before then.
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To Ana, it sometimes seemed as if what epilepsy didn’t take from her son, the drugs would. But she also knew that just one year of uncontrolled seizures meant a 1 percent chance of dying. The longer Preston’s seizures ran riot, the likelier epilepsy would kill him.
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