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July 1 Things are looking up at the RV park. Ana has found a house she wants to rent, and Preston found a computer chair he likes set out for free near the trash bin. Preston kept “Paw Paw” spinning him until he could spin no more.
Preston’s grandmother, Milly, thought he had the munchies.
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July 17 A nurse stops in for a quick check on Preston’s incisions and tube during his EEG while he is snuggling with his mother, Ana Watson, at Children’s Hospital in Aurora.
July 24 Preston gently touches his friend Hailey McGuire as she rests at his home. Hailey, Tami King’s daughter, also has Dravet syndrome. King had stopped at Watson’s home for the comfort of a friend after a doctor’s visit at which Hailey had her seventh grand mal seizure since 2 a.m. and is “still in seizure mode” as Tami calls it. There is a connection between Dravet mothers, but there also seems to be a deep understanding between Dravet kids.
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“You know you’re fighting for your child,” she said. “You just do whatever it takes to get what you need for your child. People slack off. You have to stay on top of them.”
Unfortunately the bioavailable CBD is at an infant stage with little to no research proving that lipid or any other technology is more effective. What is unique about the ViPova brand is that they seem to really care about quality and have created a higher end innovative CBD tea product. There are many challenges with this product beyond being an overpriced tea. You have to take ViPova at their word that there is actually CBD in their tea.
Ana gives Preston his CBD oil
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“The journey” is the title of this new section in the book.
“Help,” Ana writes in a Facebook message to the community of parents who have tried the same treatment. “He is spitting it out and gagging. Can I mix it with food, give rectal? Any suggestions?????”
Sydney tries to get Preston to drink some sweet tea
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Ana returned to the kitchen and shakily exhaled.
The journey would be harder and more complicated than she ever imagined.
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