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No agency thoroughly regulates the treatment providers, beyond basic licensing. No rules govern the right formulation or dosage of the marijuana extract at the core of the treatment. No studies conclusively document the side effects.
He leans in to give her a kiss on the cheek. A maroon line on the computer screen jumps to life.
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“Seizures all of the time”
Cibdol produces CBD oil tincture products that range in price from $38-$163. Cibdol is focused on selling products in Europe and Cibdol’s headquarters are based out of the Netherlands. What makes Cibdol unique is that they seem to really care about producing organic, natural product free of; pesticides, herbicides, growth hormones, and chemical fertilizers.
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The journey would be harder and more complicated than she ever imagined.
May 8 Ana Watson has to keep a tight rein on her son, Preston, as they head off to school. “He is fearless,” she said. “He will walk straight off of the steps without looking down to see where he’s going.” Preston also acts totally on impulse “if he sees something he wants. Or if he gets a chance, he will run right after it — and he’s fast.”
Fortunately this ignorance is breaking down fast, and with it the madness of reefer madness. CBD is becoming a household name thanks to the likes of Charlotte Figi. CBD has been shown to fight chronic pain, spasticity, seizures, cancer and anxiety. It is a remarkably multi-purpose, non-toxic, natural substance that will soon be in everyone’s vocabulary and in every smart person’s medicine cabinet.
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May 29 Krista Ranken cuts shoots in order to clone plants in their vegetative state. The Stanley brothers have specialized in breeding high-CBD strains of cannabis, including Charlotte’s Web, for Colorado Realm of Caring patients.
Related: Every patient’s Dravet syndrome is a little different
However it is not just a matter of bureaucratic labeling. It is a question of life and death. Due to cannabis being scheduled this way it is almost impossible for medical research into cannabinoids to take place. The DEA has the power to prevent scientists from studying these compounds – and they have done just that. The DEA has systematically and ruthlessly prevented scientists from working with cannabinoids, and the consequences have been tragic.
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There are the grand mals, known clinically as tonic-clonic seizures, that are full of violent convulsing that can last minutes. Preston falls into one about once a week. But much more common are the little eye flutters. In medical terms, they are called myoclonic seizures. Ana calls them “blinkies.” They look as though Preston is on the verge of sneezing.
Charlotte Dravet’s message to parents is simple: Don’t move.
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But now Maa wonders whether families who tried CBD with little success quit using the treatment before they could be included in the study. The Realm of Caring says only one patient had stopped using CBD at the time the survey was conducted. Maa is working on a genetic study trying to determine why some kids respond to CBD and some don’t.
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