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September 17 Preston helps “Paw Paw” Don Raynor tighten gates on the stairs during his grandfather’s visit from North Carolina to bring wife Milly her car. Milly has moved into her own apartment to relieve some of the tension that can arise between her and Ana. She plans to live in Colorado as long as her daughter and the children are here.
Preston pulls back toward the lunchroom
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Preston concentrates on popping bubbles
Yet these are gross simplifications and misrepresentations of the truth. The reality is much, much more layered than this caricature. It is not cannabis that can be dangerous to mental health and our brains, it is an excess of THC with insufficient CBD. Unfortunately, many modern day strains of cannabis contain vast quantities of THC and minimal quantities of CBD – and these strains are not medicinal. However they’re also not representative of the cannabis plant in its natural form. These strains are mutated cannabis plants bred to give the maximum intoxication, and with the health benefits bred out of the plant.
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But no doctor at Children’s recommends using cannabis or gives more than cautious advice about it.
Public opinion through the years
Ana doesn’t remember what Preston’s first word was. What she does remember is that first word arrived right on time. As did his first crawls. And his first steps.
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“Silly mommy,” he says to Ana, as she snuggles into a single hospital bed with him.
Preston rests on his porch
“For the doctor to know what they need to know about an illegal drug is a very high expectation,” said Dr. Jacqueline French, an epilepsy specialist at New York University’s Langone Medical Center. She said CBD is “driving the conversation” many doctors now have with their patients.
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She also began giving him his tra***ional seizure medicines spread out over three doses a day instead of two, and Preston was also receiving intensive therapies for speech and life skills. Somewhere in that mix, a harmony emerged.
Once begun, the morning ticked along with practiced precision. Ana made the fried potatoes Preston only ever wants for breakfast. Eight-year-old Sydney quietly dressed and got ready on her own, until it was time to ask mom to fix her ponytail.
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November 5 Ana Watson and MGA Home Healthcare nurse Chelle carry Preston to a bean-bag chair. Preston has suffered continuous myoclonic clusters most of the day. He had a 30-second grand mal seizure early in the afternoon. Preston’s new normal is to go straight back into myoclonic clusters after a seizure. Dravet syndrome children usually have a variety of seizure types, which can change for a number of reasons.
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