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Parents hope to see progress
Preston isn’t feeling well
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But for now, she walks back to her minivan and returns home to try again.
Not so much in words that anyone else would recognize. But, as the notes leak from the purple headphones covering his ears, Preston wah-wahs with the beat.
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At the end of their first visit, Dr. Kelly Knupp, Preston’s new neurologist at Children’s, suggested the EEG so that the hospital could have some starting record of Preston’s brain activity. The timing worked; Preston was already in the hospital, after the feeding tube surgery the day before.
“He is quite capable of going into a seizure that is basically all the time — all day and all night,” Greenwood said.
Related: Researchers bemoan roadblocks to medical marijuana research
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Preston’s grandmother supports his head
Supporters of the CBD treatment say Children’s sample was skewed because the hospital might not be seeing the kids doing best on medical marijuana. State health officials have recommended that Children’s receive nearly $1 million in grants for further research.
“It’s OK,” she whispers. “It’s OK, Boo-Boo.”
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June 27 Ana Watson holds her son, Preston. He wants to look out the big window and see the miles go by in their new state but is being hit by clusters of myoclonic seizures.
Ana Watson has decided to try adding THC
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Ana Watson blocks the door to keep Preston inside
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