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Preston starts singing.
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Dravet isn’t like other epilepsies.
Related: Every patient’s Dravet syndrome is a little different
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“What we would like is to get that to like a month’s supply for that amount of money,” Vest said. “We want nothing more than to have the cost be the same as sugar or salt. More and more people find out about it, the lower the price will go.”
Ana’s mom, Milly, stirs more medicine into ice cream and brings it over. But Preston won’t eat.
Mapping Preston’s seizures
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“Is that the one that causes the rash?” Ana asks.
“Stop arguing with me!” Ana finally says. “Damn.”
Families who brought their sick children to Colorado seeking a marijuana miracle found something else: each other. With doctors largely standing on the sidelines, the parents’ cannabis community offers camaraderie and support as they treat their kids.
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Being Preston’s mother taught her not to cry because tears won’t make her son better. For her, there is a process: Try one thing, then move on to the next. Lessons can be learned and applied.
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Preston yawned. Did that mean the marijuana made him sleepy? Preston ate. Did the extract make him hungry? Preston didn’t seem to seize as often.
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Keeping daydreams in check
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