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Preston has been eyeing his sister’s bike
A voice tiptoed back to her with the peanut-butter-mouth slur of a child’s early words: “Wuh moh minuh.”
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Ana grabs his arm, but he pushes her back. She tackles him and squirts the oil into his mouth, but he coughs it back up. She reaches for her cellphone.
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On Apr. 17, 2014, Gov. Phil Bryant signed a bill named for two-year-old Harper Grace Durval, making Mississippi the fifth state to legalize CBD oil. The bill calls for the National Center for Natural Products Research in Oxford to produce the medicine.
Some physicians are now stepping forward to work with providers on clinical trials for CBD, and doctors at Children’s have begun recording more specific details of the CBD products their patients are using — who is providing the medical marijuana and how much the child is taking, for instance. But the broader dynamic still hinders the study of CBD’s effectiveness. And that only increases the uncertainty that hangs over families such as Ana’s in their Colorado exile.
“We’ve pretty much tried everything else we can,” she reasoned.
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Ana Watson and nurse Chelle Bennett carry Preston
Preston’s breaths grew quieter.
“We have a special squirt-squirt we need to do, OK? You need to be a big boy,” she said.
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July 24 Preston gently touches his friend Hailey McGuire as she rests at his home. Hailey, Tami King’s daughter, also has Dravet syndrome. King had stopped at Watson’s home for the comfort of a friend after a doctor’s visit at which Hailey had her seventh grand mal seizure since 2 a.m. and is “still in seizure mode” as Tami calls it. There is a connection between Dravet mothers, but there also seems to be a deep understanding between Dravet kids.
So Ana visited her CBD provider, who gave her oil at a 10:1 ratio of CBD to THC, and the next day she watched as her son ate better than he had in months: a plate of fried okra, a plate of potato chips smothered in barbecue sauce, a stick of string cheese, a Frosty and, most surprising of all, tuna salad with crackers.
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Therefore, when someone tells you cannabis is bad for your health, or cannabis is good for your health, always be wary. These people are either ignorant or not telling you the truth.
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Graphic: Mapping Preston’s seizures
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