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Children have arrived here nearly lifeless. Families have lived out of motels when they couldn’t find housing. Parents have shown up at a medical marijuana provider’s house in the middle of the night.
One of approximately 70 cannabinoids found in cannabis, CBD (or cannabidiol) is non-toxic and non-intoxicating. Also of great importance, CBD has been shown to be an anti-oxidant, an anxiolytic (to have anti-anxiety effects), an anti-carcinogen (to have anti-cancer effects), an anti-psychotic, an anti-convulsive, an anti-spasmodic, and is also able to reduce seizures and reduce the effects of spasticity.
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Since then, she says he has had far fewer seizures and is able to sleep through the night.
“It’s OK,” Milly whispered again. “It’s OK.”
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Preston hides from his mom
She also began giving him his tra***ional seizure medicines spread out over three doses a day instead of two, and Preston was also receiving intensive therapies for speech and life skills. Somewhere in that mix, a harmony emerged.
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The shaking calmed.
“But you have to be careful that you’re not making things in your brain,” she said. “We’re all watching him and his behavior.”
On June 3, 2014, Gov. Andrew Cuomo announced that the state has entered into an agreement with GW Pharmaceuticals to investigate the efficacy of cannabidiol use by children suffering from the seizure disorders Dravet's syndrome and Lennox-Gastuat syndrome. The clinical trials will take place at hospitals, universities and medical colleges. GW is already working with NYU's Langone Medical Center on a trial involving 60 children and their CBD product, Epidiolex. New York passed a broader medical marijuana bill on June 20.
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Doctors at Children’s Hospital Colorado recommend that kids with epilepsy get a baseline EEG before beginning CBD treatments. Doctors then ask patients to follow up with another EEG three or four months later to gauge if any changes have occurred. EEGs aren’t sensitive enough to pick up on all improvements — such as if a child begins using new words. But doctors believe it is a good way to measure big changes. “If your EEG is abnormal, it’s probably going to be pretty hard to be a good student,” said Dr. Kevin Chapman, a neurologist at Children’s.
We use medicinal hemp genetics rather than feral hemp genetics for our oils. This allows for a oil with a far richer cannabinoid profile
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Today, there are 427 children under 18 on the state’s medical marijuana registry, including 13 under 2 years old. That total number is up from just 60 in August 2013, when the documentary aired. More arrive every month.
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Dravet isn’t like other epilepsies.
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