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Preston helps “Paw Paw” Don Raynor
But, even now, the seizures remain a mystery. Some little eye-flutter seizures cause leaping spikes on the screen. Some seem to skip by without a change in the pattern. So chaotic is Preston’s brain that, looking later at the electroencephalogram, or EEG, doctors will have a hard time telling from the readings when he was awake and when he was asleep, when he was seizing and when he was still.
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July 9 Preston, his mother, Ana Watson, sister Sydney Watson and grower Jason Cranford take a first look at the plants, named “Haleigh’s Hope,” that will provide the oil for an attempt to control Preston’s seizures. “This is the plant that is going to help Preston,” Ana said.
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Watch Dr. Kelly Knupp explains what doctors discover by examining Preston’s electroencephalogram.
No child in Colorado currently takes pure CBD. Instead, think of a marijuana plant like a chunk of gold ore. Only a tiny part of it is valuable; the rest needs to be refined away. To do this, CBD producers grow marijuana plants that are high in CBD and then use a solvent to dissolve the cannabinoids off the harvested plant material. The resulting slurry has the same cannabinoid makeup of the plant it came from. Depending on the method, the solvent may be evaporated away and the rest is diluted into oil.
The few, small studies of its efficacy, though, are preliminary and even disputed. Federal laws against marijuana have hampered research on CBD for the past four decades. As a result, states have increasingly passed their own laws legalizing CBD, based on little more than stories such as Charlotte Figi’s and the hopes of families following in her path.
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Ana Watson and nurse Chelle Bennett carry Preston
Related: Every patient’s Dravet syndrome is a little different
July 3 Preston tries his hardest to get this box into the family’s new home. Finally, he is able to help unload the trailer, which has held his complete attention as it followed his family across the country on the trip to Colorado.
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August 20 Ana Watson gets a firsthand view of the trimming and drying process that goes into making the CBD oil she is using to treat her son, Preston.
“But you have to be careful that you’re not making things in your brain,” she said. “We’re all watching him and his behavior.”
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Ana is tight beside Preston
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The oil is not cheap. According to Charles Vest, the Vice President of Communications for HempMedPX, a week’s worth of their most potent oil cost about $400 to $500.
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