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Preston starts singing.
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July 24 Preston gently touches his friend Hailey McGuire as she rests at his home. Hailey, Tami King’s daughter, also has Dravet syndrome. King had stopped at Watson’s home for the comfort of a friend after a doctor’s visit at which Hailey had her seventh grand mal seizure since 2 a.m. and is “still in seizure mode” as Tami calls it. There is a connection between Dravet mothers, but there also seems to be a deep understanding between Dravet kids.
Cannabis is currently a Schedule 1 substance in the United States. This means that the federal government considers it among the most dangerous and least medically useful substances in the world. This is patently absurd.
While some can be treated by targeting the specific areas of the brain where the seizures’ electrical overloads originate, Dravet’s seizures come from everywhere, the result of a genetic mutation that occurs in every nerve cell in the brain.
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One of those extreme cases is out of Orange County. Blake Zika, 22, has suffered from frequent seizures since he was four years old. His illness has left him developmentally challenged.
A bundle of 21 multicolored electrical wires poke from the top of a wrapping on Preston’s head, running off the bed and to the computer. Every gesture, every word, every eye blink shows up as activity on the screen, where blue, maroon and green lines measure Preston’s brain activity. It is one answer to the question that has vexed Ana for the past 12 years: What is happening inside her son’s head?
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No agency thoroughly regulates the treatment providers, beyond basic licensing. No rules govern the right formulation or dosage of the marijuana extract at the core of the treatment. No studies conclusively document the side effects.
Although Hemp Meds does not grow the hemp or produce the oil used in its products, it’s parent company however, does. Through selective breeding they developed unique hemp cultivars that naturally produce elevated levels of CBD (cannabidiol). These special high-CBD hemp cultivars are sustainably grown and harvested in select microclimates on generational farms in hemp-friendly countries. Once harvested, this hemp is carefully processed and undergoes high-tech quality testing. The resulting standardized, premium quality CBD hemp oil is then imported and put into oil concentrations, tinctures, and topical products to be sold around the world.
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July 5 Preston wakes up for a moment during a series of myoclonic cluster seizures caused by Dravet syndrome. Preston can have hundreds of “blinky” or “butterfly” seizures per session. If the cycle is not broken, it can lead to grand mal seizures.
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