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He can have hundreds of blinkies a day. And, though they usually pass gently, each one is like an eraser across his brain’s chalkboard. Over and over, new development is wiped clean by the seizures. So, over and over, he learns the same things.
Cibdol also tells a good story about the quality control of their CBD oil products, but they give very little insight into what this actually means. Cibdol claims that their product meets strict cannabinoid content guidelines but also gives no indication what this actually means.
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Her new friends in Colorado — parents who, like her, came to the state seeking hope through cannabis — cheered on her social media updates.
Ana doesn’t remember what Preston’s first word was. What she does remember is that first word arrived right on time. As did his first crawls. And his first steps.
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“Open up,” Ana coos.
In response to the DEA's ruling that states that CBD Oil is now a schedule 1 substance, the TX Wellness Center has released the following Press Release
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Some epilepsies respond well to generalized anti-seizure drugs. But the specific genetic mutation of each Dravet patient is different, meaning what works for some won’t work for others. Preston has at least four different kinds of seizure types, and they varied in severity and frequency as he grew older.
Jessica Raynor reads Preston a bedtime story
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Slowly working his way through the potatoes, Preston’s hands stopped and his eyelids flickered for a few seconds before popping back open. The first seizure of the day had come and gone.
While doctors at Children’s don’t exactly want their patients on CBD, they are eager to find out what it’s doing. Knupp told Ana that doctors at the hospital now recommend all patients have both an EEG and a bloodwork exam prior to starting CBD. They would like to run follow-up tests every three or four months.
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“He is quite capable of going into a seizure that is basically all the time — all day and all night,” Greenwood said.
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“You were being a big, mean shark. It’s OK.”
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