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“For the doctor to know what they need to know about an illegal drug is a very high expectation,” said Dr. Jacqueline French, an epilepsy specialist at New York University’s Langone Medical Center. She said CBD is “driving the conversation” many doctors now have with their patients.
A voice tiptoed back to her with the peanut-butter-mouth slur of a child’s early words: “Wuh moh minuh.”
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Inside Children’s Hospital Colorado, Ana Watson stares across the small exam room at the woman in a white lab coat
October 7 Preston and Haleigh dance while Tami watches in the background. The families met at Milly’s house for dinner in order to save money on food and to get together for something other than emergencies.
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Not so much in words that anyone else would recognize. But, as the notes leak from the purple headphones covering his ears, Preston wah-wahs with the beat.
A desperate hope and well-publicized stories about kids who have responded to the drug drive the families here, despite scant research on CBD’s overall efficacy. Scientists know so little about the treatment that it’s not even clear what CBD might do in the brain to impact seizures.
ViPova, owned by Lexaria, has created a CBD oil tea product that ranges in price from $20-$107. ViPova is a US based company that is utilizing lipid technology to make CBD more bioavailable. This happens because the endocannabinoid system is lipid based which could mean that your dollar goes further because you need less CBD to have the same effects as an oil based CBD products.The Medics is a Colorado based CBD oil company that has created two types of tincture products that range in price from $40-$196. The first and less expensive line, called “High Grade”, is made from European hemp. The second line, known as “Premium”, is made from 100% USA Colorado grown hemp and cost a bit more. This difference in price is probably due to the sheer cost of growing their own hemp.
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Ana tries to keep her daydreams in check. What good is it to view her child as something he’s not? But there is one thing she hears the parents of Dravet children often say, and, yes, she hesitantly admitted, she would like it, too.
June 27 Ana Watson holds her son, Preston. He wants to look out the big window and see the miles go by in their new state but is being hit by clusters of myoclonic seizures.
Ana is trying a new way of giving Preston his oil
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Overall cost varies based on the amount a child takes, which itself varies based on how big the child is. Different providers also charge different prices. For kids using Charlotte’s Web, a typical family spends about $300 a month for CBD oil.
“What I always tell people is you have to be really careful,” said Dr. Larry Wolk, the executive director of the Colorado Department of Public Health and Environment. “They have to know that it’s outside of the regulatory process, outside of the (Food and Drug Administration), and it’s very much ‘Buyer beware.’”
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The state health department, which manages the patient registry that all children using medical marijuana must join, offers almost no guidance.
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Seven months and 1,600 miles after their journey began, Ana has finally given Preston his first dose of marijuana.
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