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Some epilepsies respond well to generalized anti-seizure drugs. But the specific genetic mutation of each Dravet patient is different, meaning what works for some won’t work for others. Preston has at least four different kinds of seizure types, and they varied in severity and frequency as he grew older.
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July 9 Ana Watson finally is able to get CBD oil for Preston. The journey hasn’t been without frustration. She has had to fill out many forms and file a change-of-patient record for the medical marijuana registry. She now is overwhelmed with worries: how much to buy and when; how strong it will be; how much to give Preston; whether to add THC.
Preston plays carpenter in the dining room
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Ana Watson and her family moved from North Carolina to Colorado with the dream that medical marijuana would help her son, Preston, and stop his relentless seizures. Their journey was harder than they expected. The answers were more elusive than the happy anecdotes seemed to promise. But they kept pressing forward because they said they had no other choice. Because Colorado was the only hope they had left.
ViPova, owned by Lexaria, has created a CBD oil tea product that ranges in price from $20-$107. ViPova is a US based company that is utilizing lipid technology to make CBD more bioavailable. This happens because the endocannabinoid system is lipid based which could mean that your dollar goes further because you need less CBD to have the same effects as an oil based CBD products.The Medics is a Colorado based CBD oil company that has created two types of tincture products that range in price from $40-$196. The first and less expensive line, called “High Grade”, is made from European hemp. The second line, known as “Premium”, is made from 100% USA Colorado grown hemp and cost a bit more. This difference in price is probably due to the sheer cost of growing their own hemp.
Schedule 1 drugs (which are illegal and include LSD and heroin) are said to have "no currently accepted medical use and a high potential for abuse." The announcement published in the Federal Register last week details the new ruling for CBD, which sets aside a new code number for "marihuana extract" and pertains to any "extract containing one or more cannabinoids ... derived from any plant of the genus Cannabis." This decision came despite the fact that CBD from hemp—cannabis with no more than between 0.3% and 1% of the active ingredient THC—has been widely available up till now via mail order and the internet.
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Many of our competitors will list the MG dosage of their hemp extract without publishing the strength of their extract.
Families who brought their sick children to Colorado seeking a marijuana miracle found something else: each other. With doctors largely standing on the sidelines, the parents’ cannabis community offers camaraderie and support as they treat their kids.
Inside Children’s Hospital Colorado, Ana Watson stares across the small exam room at the woman in a white lab coat
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An hour-and-a-half later, as Preston quivered on her lap in the bathroom following the first dose, she realized this journey would be tougher than she hoped.
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“Keppra often causes behavioral issues,” the doctor responds.
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