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“The big thing that parents are always saying,” Ana said, “is they want their child to say, ‘I love you.’?”
On the next page is a picture of Preston with his head swaddled in gauze, a thick bundle of electrical wires poking out of the top of the wrapping like a bizarre ponytail.
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While some can be treated by targeting the specific areas of the brain where the seizures’ electrical overloads originate, Dravet’s seizures come from everywhere, the result of a genetic mutation that occurs in every nerve cell in the brain.
July 25 Preston isn’t feeling well and took to the couch, but sister Sydney decided he needed a little cheering up by playing swoosh with his blanket.
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Preston’s legs folded under him, and he crashed hard to the ground. Milly burst from her chair and ran over to him, reaching him in time to see his eyes roll toward his brows. And then, lying there in the grass he had soaked, Preston began to shake violently.
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August 6 Preston cries as Milly and his nurse, Chelle Bennett, try to remove his wet clothes and warm him with blankets. The pain from a fall while he was playing with a water slide appears to have caused a grand mal seizure.
While CBD is most famous for being a compound found in the cannabis plant, it is also found within the hemp plant. While it must be noted that the hemp plant is a part of the cannabis family, I make the distinction between them because current laws also make that distinction. While hemp is legal in 40 countries (including all 50 states of America) cannabis is illegal in every country of the world except Uruguay.
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Cannabidiol (CBD) is one of the many chemicals in marijuana. Recent publicity about children who suffer from seizures benefitting from oil extracted from marijuana that has almost no THC has set off a wave of legislation like never seen before. Now state reps can favor marijuana without the fear of people getting high from it. This explains why so many Republicans are sponsoring these bills.
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An early and oft-reported survey of children on Charlotte’s Web found that 80 percent who tried it eliminated at least three of every four of their seizures. Now, even one of the specialists involved in that study questions whether it was overly optimistic. Subsequent studies have suggested the response rate might be closer to 30 percent or, perhaps, even lower.
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Physicians assistant Tom Dishion talks to Ana
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