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This time, she walks to him without a smile. She leads him into the bathroom and pulls down his diaper. She muscles him close.
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Is this finally it?
July 12 Ana watches Preston fight off his first dose of CBD oil, being administered by a family friend who was visiting from North Carolina. The dose went into Preston'’s mouth, but he immediately spit it out.
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And, indeed, in this extreme form of the plant, cannabis can be problematic for mental health. But, and it’s a great big but, in other forms cannabis can be therapeutic and remarkably non-toxic and safe to use.
An hour-and-a-half later, as Preston quivered on her lap in the bathroom following the first dose, she realized this journey would be tougher than she hoped.
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A row of cannabis medicine bottles. Cannabis had been a popular medication, and was prescribed for many ailments before the 1937 “Marihuana Tax Act” effectively outlawed it.
Related: Every patient’s Dravet syndrome is a little different
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Ana and Preston head off to school
At the North Carolina Children’s Hospital in Chapel Hill in May, Dr. Robert Greenwood hustled into the meeting room wearing a tie covered with Dr. Seuss characters.
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Ana is trying a new way of giving Preston his oil
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But, even now, the seizures remain a mystery. Some little eye-flutter seizures cause leaping spikes on the screen. Some seem to skip by without a change in the pattern. So chaotic is Preston’s brain that, looking later at the electroencephalogram, or EEG, doctors will have a hard time telling from the readings when he was awake and when he was asleep, when he was seizing and when he was still.
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