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July 5 Preston wakes up for a moment during a series of myoclonic cluster seizures caused by Dravet syndrome. Preston can have hundreds of “blinky” or “butterfly” seizures per session. If the cycle is not broken, it can lead to grand mal seizures.
“OK,” Ana says as she fills the capsules. “It’s not going to be pretty.”
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“It was fun, though, wasn’t it, Preston?”
Expand this story
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“The big thing that parents are always saying,” Ana said, “is they want their child to say, ‘I love you.’ ”
At 12 years old, Preston cannot spell his name. He cannot reliably count to 10. He is still learning his colors. He doesn’t know his mom’s name or where he lives or how to call home if he gets lost. He wobbles when he walks and falls over easily.
Preston rests on his porch
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In a lab in Seattle, black mice twitch uncontrollably as they work their way through an electrified cage, furry little avatars of kids with Dravet syndrome...
Unfortunately the bioavailable CBD is at an infant stage with little to no research proving that lipid or any other technology is more effective. What is unique about the ViPova brand is that they seem to really care about quality and have created a higher end innovative CBD tea product. There are many challenges with this product beyond being an overpriced tea. You have to take ViPova at their word that there is actually CBD in their tea.
Physicians assistant Tom Dishion talks to Ana
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Then the next day, Preston suffered a grand mal seizure that left him writhing violently. He had another one the day after that. Getting him to eat or drink had become nearly impossible, and that meant he wasn’t getting consistent doses of either the CBD treatment or his tra***ional medications, both of which Ana tried to hide in Preston’s food or sweet tea.
Now she can make any ratio she wants, Jason says. It’s the third formulation change since Preston started the oil six weeks ago.
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“That,” she breathed back in, “was pain.”
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May 7 Preston resists his mother’s gentle requests to get up as he curls up to his little sister, Sydney, 8. Ana Watson’s mornings quite often start with both of them in her bed at her North Carolina home.
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