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Ana takes the family to the shore
July 23 An absent seizure looks and feels just like it sounds: Preston stopped interacting, staring into nothing, drool leaking from his mouth, his hands unmoving. It was a startling change from the blinking and jaw-working during his “normal” myoclonic clusters. Dravet syndrome children experience many types of seizures. The seizures can change, and some children will have a combination of seizure types, all during one episode.
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Although Hemp Meds does not grow the hemp or produce the oil used in its products, it’s parent company however, does. Through selective breeding they developed unique hemp cultivars that naturally produce elevated levels of CBD (cannabidiol). These special high-CBD hemp cultivars are sustainably grown and harvested in select microclimates on generational farms in hemp-friendly countries. Once harvested, this hemp is carefully processed and undergoes high-tech quality testing. The resulting standardized, premium quality CBD hemp oil is then imported and put into oil concentrations, tinctures, and topical products to be sold around the world.
But for now, she walks back to her minivan and returns home to try again.
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On the next page is a picture of Preston with his head swaddled in gauze, a thick bundle of electrical wires poking out of the top of the wrapping like a bizarre ponytail.
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July 29 Preston meets Dr. Alan Shackelford at his office in Denver. He and his mother, Ana, are visiting the doctor for help with Preston’s dosing. Shackelford evaluated Preston’s physical con***ion, then went over his medical history with Ana and her mother to figure out a starting point to use the CBD oil.
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She asks about the amount she’s giving. “Should I up it?”
September 3 Ana is trying a new way of giving Preston his oil. She is giving him straight THC by mouth separately from the CBD oil she gives him in his feeding tube. He hated it. She squirted it in and he started spitting and sputtering as soon as he tasted it. She ended up mixing it with formula and using his feeding tube. By using the oil separately she can figure his dosing ratios for tighter control.
On Mar. 25, 2014, Utah Gov. Gary Herbert signed HB 105 into law, making Utah the first state to legalize CBD oil. On Mar. 11, Utah's Senate unanimously passed the bill, sponsored by Republican Rep. Gage Froerer, which instructs the state's Department to Agriculture to grow low-THC industrial hemp for the purpose of producing cannabis oil. Known as the "Plants Extracts Amendment," the bill allows Utah resdients to acquire the medicine in Colorado and bring it back to Utah.
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The documentary about Charlotte Figi aired the next summer, and by late 2013 — as Preston approached his 12th birthday stuck in the same developmental rut he had been in for his previous nine — the online whispers of a marijuana miracle in Colorado had turned into a roar. One by one, other Dravet children’s parents — with whom Ana had become close friends online but never met in person — began arriving in Colorado, posting hopeful updates on their children’s progress. The hope tugged at her.
CBD: Public Awareness and Education
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An hour-and-a-half later, as Preston quivered on her lap in the bathroom following the first dose, she realized this journey would be tougher than she hoped.
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“It’s been a constant struggle of trying to limit the number of seizures he has,” Greenwood said of Preston, who at age 1 started as a patient of Greenwood’s. “We have tried literally everything.”
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