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“Tried it,” Ana says.
For Immediate Release:
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The neurologists were baffled and kept hunting for new medicines.
April 13 Ana Watson gets her first look at CBD oil at Jason Cranford’s grow operation in Boulder. Ana visited Colorado ahead of moving her family from North Carolina to change her residency and apply for a medical marijuana red card for Preston.
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“You think you’d get used to seeing him like this,” she said. “But it scares me to death every time.”
“The big thing that parents are always saying,” Ana said, “is they want their child to say, ‘I love you.’?”
Some epilepsies respond well to generalized anti-seizure drugs. But the specific genetic mutation of each Dravet patient is different, meaning what works for some won’t work for others. Preston has at least four different kinds of seizure types, and they varied in severity and frequency as he grew older.
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May 8 Ana Watson has to keep a tight rein on her son, Preston, as they head off to school. “He is fearless,” she said. “He will walk straight off of the steps without looking down to see where he’s going.” Preston also acts totally on impulse “if he sees something he wants. Or if he gets a chance, he will run right after it — and he’s fast.”
Families who brought their sick children to Colorado seeking a marijuana miracle found something else: each other. With doctors largely standing on the sidelines, the parents’ cannabis community offers camaraderie and support as they treat their kids.
The toy was a Slip ‘N Slide, on which he and his sister, Sydney, were supposed to be shooting across the tarp and under an inflatable shark’s mouth that held a spraying hose. Instead, Preston grabbed the hose and became the shark.
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Hope for Preston
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“It’s a boy!” the sticker on the page proclaims.
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Dravet isn’t like other epilepsies.
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