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There have been times Blake would have a seizure every half hour, and his mother, Stacy Lynch, would worry how he would get through the night.
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Related: French scientist cautions parents: Too little known about CBD treatment
An early and oft-reported survey of children on Charlotte’s Web found that 80 percent who tried it eliminated at least three of every four of their seizures. Now, even one of the specialists involved in that study questions whether it was overly optimistic. Subsequent studies have suggested the response rate might be closer to 30 percent or, perhaps, even lower.
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July 9 Preston, his mother, Ana Watson, sister Sydney Watson and grower Jason Cranford take a first look at the plants, named “Haleigh’s Hope,” that will provide the oil for an attempt to control Preston’s seizures. “This is the plant that is going to help Preston,” Ana said.
There are times, Ana said, when she can almost see what Preston could become if the seizures would just let him.
May 9 Preston’s at-home nurse Sheila Wall keeps watch after a sudden cloudburst while picking strawberries. Excitement and the quick drop in temperature brought on almost nonstop myoclonic seizures that Preston’s mother, Ana, fears may turn into a full grand mal seizure before they get home.
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Preston spits out his seizure medications
Preston resists his mother
On the next page is a picture of Preston with his head swaddled in gauze, a thick bundle of electrical wires poking out of the top of the wrapping like a bizarre ponytail.
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“AWESOME!!” one wrote beneath the video of Preston singing.
“The journey” is the title of this new section in the book.
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