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Ana’s mom, Milly, stirs more medicine into ice cream and brings it over. But Preston won’t eat.
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Like all of the parents coming to Colorado in search of a cure, Ana Watson hopes hers will become a success story. Staying in North Carolina offered no hope for Preston. Still, she can’t predict what lies ahead.
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Jessica Raynor reads Preston a bedtime story
“The journey” is the title of this new section in the book.
“We’ve pretty much tried everything else we can,” she reasoned.
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July 5 Preston wakes up for a moment during a series of myoclonic cluster seizures caused by Dravet syndrome. Preston can have hundreds of “blinky” or “butterfly” seizures per session. If the cycle is not broken, it can lead to grand mal seizures.
“Are you seeing any results?” Jason asks.
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Milly walks out of the room, saying they should try later.
Slowly working his way through the potatoes, Preston’s hands stopped and his eyelids flickered for a few seconds before popping back open. The first seizure of the day had come and gone.
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Ana tries to keep her daydreams in check. What good is it to view her child as something he’s not? But there is one thing she hears the parents of Dravet children often say, and, yes, she hesitantly admitted, she would like it, too.
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October 8 Jared Stanley loads the drying poles onto the holding racks during the Realm of Caring harvest. The 17-acre plot will be hand harvested and dried by draping the plants over poles in a huge warehouse.
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