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In August, she learned online about CBD and obtained hemp oil from a friend of a friend. That oil happened to be high in THC and made Blake have more seizures. In search of a safe, consistent product, Lynch found HempMedPX. She put the CBD-rich hemp oil into a pill for Blake to ingest.
The doctors relied on parents to report how much CBD reduced seizures. And that opened the door for the study’s two most intriguing findings.
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“The big thing that parents are always saying,” Ana said, “is they want their child to say, ‘I love you.’?”
“Time to get up, Boo-Boo,” Ana said to him. “Come on.”
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“That,” she breathed back in, “was pain.”
Dr. Joshua Hartsel tests the products of HempMedPX and says they contain less than 1 percent THC and up to 90 percent CBD. He says the products are tested three to five times and at least once at a third-party lab.
“OK,” Ana said, “One more minute.”
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Ana doesn’t remember what Preston’s first word was. What she does remember is that first word arrived right on time. As did his first crawls. And his first steps.
“AWESOME!!” one wrote beneath the video of Preston singing.
Ana tries to keep her daydreams in check. What good is it to view her child as something he’s not? But there is one thing she hears the parents of Dravet children often say, and, yes, she hesitantly admitted, she would like it, too.
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After he harvests his marijuana plants, he hangs them over the arms of a weight bench in his front room, ready to be trimmed. He extracts the oil in a lab he assembled in his garage. When families arrive, his German shepherd is there to greet them.
The hospital didn’t see any improvement in the before-and-after EEGs of four kids whose seizures appeared to lessen significantly. That may have been due to something called “electroclinical dissociation,” where the seizure still occurs but its outward indicators disappear. It also might be that parents can pick up on smaller improvements than an EEG can, said Dr. Kevin Chapman, a pediatric neurologist at Children’s who was a co-author on the study.
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“It’s OK,” Milly whispered again. “It’s OK.”
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[DGO]Toddler Seizures Treated with Medical Marijuana
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