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He had 200 seizures Monday through Thursday, so bad he lost his swallowing reflex,” Lynch said. “I have 25 known drugs that he had to be put in a medically induced coma and these are all FDA approved and the side effects are just horrible.
Today, there are 427 children under 18 on the state’s medical marijuana registry, including 13 under 2 years old. That total number is up from just 60 in August 2013, when the documentary aired. More arrive every month.
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Cannabidiol, also known as CBD or industrial hemp oil, is making a huge name for itself in vaping circles everywhere. While many people who choose to vape do so to receive nicotine or just for pure enjoyment, vaping with industrial hemp oil could potentially offer wider array of benefits than many people originally thought. Also known as cannabis oil, cannabidiol comes from the industrial hemp plant and is also a common ingredient in marijuana. However, the potential benefits are vast, including lessening of physical pain and some psychological problems, such as anxiety, depression, sciatica, and more.
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So, the entire day after that first dose, Ana watched Preston like a poker player looking for a tell.
This time, she walks to him without a smile. She leads him into the bathroom and pulls down his diaper. She muscles him close.
But, when parents such as Ana Watson arrive with little more than a desperately sick child and a hope to make it better, they walk into uncharted territory. They become part of a medical experiment that plays out in living rooms, not doctors’ offices.
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But, to get a true starting level, the EEG meant Ana would need to take Preston off CBD temporarily. She had spent seven months planning how to get to Colorado for the treatment. She was pausing it after five days.
“What I always tell people is you have to be really careful,” said Dr. Larry Wolk, the executive director of the Colorado Department of Public Health and Environment. “They have to know that it’s outside of the regulatory process, outside of the (Food and Drug Administration), and it’s very much ‘Buyer beware.’”
“Silly mommy,” he says quietly.
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July 24 Preston gently touches his friend Hailey McGuire as she rests at his home. Hailey, Tami King’s daughter, also has Dravet syndrome. King had stopped at Watson’s home for the comfort of a friend after a doctor’s visit at which Hailey had her seventh grand mal seizure since 2 a.m. and is “still in seizure mode” as Tami calls it. There is a connection between Dravet mothers, but there also seems to be a deep understanding between Dravet kids.
Physicians assistant Tom Dishion talks to Ana
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Turn the page, and there’s a picture of Preston in a white onesie. Then a picture of Preston sitting in a kid-sized Jeep.
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“The vast majority of people, if they were going to respond, had a dramatic reduction of seizures,” Maa said. “That doesn’t represent the larger, global number of people who had exposure to it. We don’t know those true numbers yet.”
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