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“We pushed that too far, didn’t we?”
Graphic: Mapping Preston’s seizures
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July 23 An absent seizure looks and feels just like it sounds: Preston stopped interacting, staring into nothing, drool leaking from his mouth, his hands unmoving. It was a startling change from the blinking and jaw-working during his “normal” myoclonic clusters. Dravet syndrome children experience many types of seizures. The seizures can change, and some children will have a combination of seizure types, all during one episode.
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“That,” she breathed back in, “was pain.”
Cannabidiol (CBD) is one of the many chemicals in marijuana. Recent publicity about children who suffer from seizures benefitting from oil extracted from marijuana that has almost no THC has set off a wave of legislation like never seen before. Now state reps can favor marijuana without the fear of people getting high from it. This explains why so many Republicans are sponsoring these bills.
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There is, however, a further grey area to consider. In certain countries of the world – Canada, for instance, and several countries in the EU – cannabis plants which have a very low THC content are considered to be hemp. This percentage is usually either 0.2% or 0.3%. This means that for very carefully grown cannabis plants CBD can be obtained from cannabis flowers or “buds”.
The doctor looks at her list. She looks sympathetically at Ana.
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August 20 Ana Watson gets a firsthand view of the trimming and drying process that goes into making the CBD oil she is using to treat her son, Preston.
They look at different forms of epilepsy, different kinds of seizures and different measurements of success. At least five different types of CBD-rich marijuana therapies are represented in the studies.
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A family photograph of Preston as a baby
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